Those who have Parkinsons disease, their caregivers, family, friends, and other interested parties
By providing education, resources and support for our Parkinsons community
We fill a local need for new information on and solutions related to Parkinson's disease.
We provide non-biased, non-partisan support and education for those effected by Parkinsons disease.Torrington Area Parkinsons Support Group
The Torrington Area Parkinsons Support Group recently organized to fill a local need for new information on and solutions related to Parkinson's disease. Our meetings are held every fourth Saturday of each month at 10:00 AM at the Sullivan Senior Center located in Torrington. (check our calendar)
Meetings include speakers from health care professions and local support services organizations, as well as separate group sessions for both the caregiver and caretaker.
Our Northwestern Connecticut area parkinsons support group meetings are open to those who have Parkinsons disease, their caregivers, their family and friends, and other interested parties.
For more information contact Sue Pelchat at 860-201-7913 or Ann Quattrocchi at 860-309-6336 or Carol Pathe at 860-482-4610
Please save this email, and return to it tomorrow morning to click into our ZOOM room. Click on the blue line that says, "Join our Cloud HD Video meeting."
I will be in the room at 9:45AM to give a brief overview of ZOOM for anyone who is not familiar with it. It's easy peasy.
If you are not attending the ZOOM overview, please enter the meeting by 9:55AM so that we can have everyone admitted by 10AM when our meeting begins. Thank you.
Shielded hugs,
Sue
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PROGRAM
Welcome
Announcements
Dr. Michelle Bobulinski, Neuropsychologist from the HHC Movement Disorder Center in Cheshire, will be our guest speaker. Her topic: Cognition and Parkinson's Disease. Q&A to follow.
After Dr. Bobulinski's program, Susan Lather of APDA will introduce Dr. Lahrmann, a neurologist new to the area.
Time: Jun 27, 2020 10:00 AM Eastern Time (US and Canada)
Join Zoom Meeting
Join our Cloud HD Video Meeting
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Exciting News!
EXERCISE PROGRAM - "Keep It Movin'"
The CHH exercise program will resume at the end of June, probably on June 29th, if there is enough interest. Nancy Perrotta and Sue Saya of HHCHealth are planning to initiate the program at the East Main Street facility (formerly Sky Top Lanes).
Instructors and PT staff will be taking health precautions for the personal protection of all present:
Small class size (4-5 + the instructor)
Separate entrance from patients
Taking temps of everyone on entry
Facility cleanliness
Kelly will probably lead the sessions if she has the times open in her schedule.
Nancy and Sue Saya need to know who would be interested in resuming, or starting, the in-person exercise program. Please contact Sue Saya at This email address is being protected from spambots. You need JavaScript enabled to view it. as soon as possible if you would like to participate. You can let her know to sign you up, or, if you're not ready to start right now, let her know when you think you might be ready.
If you are hesitant to attend an in-person class but would consider an online session, please contact Sue Saya with that information as well. It may be a possibility.
As always, TAPSG assumes no liability for your participation but will cover the cost of the exercise program for as long as we can afford it. And, as always, we expect each person to attend all classes once they sign up.
Why We Walk for Parkinson's Research
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3 Important Clinical Trials!
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Contact Sheila Thurlow, MSN, RN, CCRP at 860-302-1698. Sheila is coordinating (locally) these 3 important clinical trials and can provide more information.
Remember: fully enrolled clinical trials are critical to PD research. Your participation is critical!
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Championing Parkinson’s Research!
Thank you for your dedication to Fox Insight. With over 20,000 participants, you are part of the largest Parkinson’s disease (PD) research study in the world! Every time you log in to Fox Insight and fill out surveys, you are providing doctors, researchers, and drug developers with information to better understand Parkinson’s from the true PD experts—patients and their families. Read the first issues of the Click to read the newsletter. We will circulate two issues each year to keep you informed about study findings, updates, and new opportunities for participation.
Did You Know?
- Every 9 minutes an individual is diagnosed with Parkinson's Disease
- 1 in 10 people will have Parkinson's
- There is no “definitive test” that can confirm Parkinson's disease, except after death
- Parkinson's is not just your "grandparent's" disease or for "old" people
- Currently there is "no cure" for Parkinson's
- Medication can substitute for the missing dopamine, but it is only a temporary solution
- There are 60,000 new cases of Parkinson's Disease a year
- The total cost to the nation is estimated to exceed $6 Billion annually
- Without more federal funding for research to find a cure for Parkinson's, the numbers of Parkinson patients will only increase each year
Torrington Connecticut Area Parkinsons Support Group is sponsored by the Sullivan Senior Center, Charlotte Hungerford Hospital and the Connecticut American Parkinsons Disease Association.
The Mission of the Torrington Area Parkinson’s Support Group is to maximize strength, minimize disability and achieve and maintain full potential of people with Parkinson’s and their caretakers.